The Bash for Cockayne Syndrome

The Bash for Cockayne Syndrome
Friday, June 29, 2018
7 pm - 12 am

Woodmont Country Club
1201 Rockville Pike
Rockville, MD 20852

Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, developmental and neurological delays, and a shortened lifespan. While CS children have been given a terrible lot in life, their lives are remarkable. One of the characteristics of CS is a jovial and joyful demeanor.

The National Initiative for Cockayne Syndrome (NCIS) is hosting The Bash for Cockayne Syndrome in the hopes of funding medical education to support early diagnosis and research needed to find a viable treatment for this disease. 100% of your tax deductible donation will go directly to fund medical education and research related to CS through the NCIS.

Click here for more information on the event. To purchase tickets click here.


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